Joseph's 2nd MRI

We had another MRI performed when I was seven weeks pregnant.  We had the MRI due to the seizures.  The doctor wanted to make sure everything was ok in his brain and there was nothing abnormal in the brain causing them.  The MRI was stable, meaning nothing had changed since our last ultrasound.  However, we got a conflicting reading.  Both MRIs stated that Joseph had ventriculomegaly (a "moderate" case).  One said because of external hydrocephalus and the other because of white matter loss.  What did that mean?!  The doctor got a second opinion on the readings to make it clear what route we take with Joseph.  Well, at our last visit (January 2013), we were told that a team of radiologists got together and reviewed his case and determined that he has ventriculomegaly due to white matter loss.  That was shocking and hard to hear.  I thought of Jonathan and the fact he already has ventriculomegaly.  Two boys with ventriculomegaly.  There has to be something hereditary going on here, but all of Joseph's tests were normal and he has perfect DNA. Sometimes, I guess we never get the answers we look for.

I did ask our doctor about BESS.  Did he still have it?  Her answer was that it was different now, but how we were treating him would be no different.  She told us to monitor him for delays and setbacks.

Joseph's first snow!!  (2/16/2013)

Even with his new diagnosis, Joseph is doing great.  His speech is picking up and he is saying a lot more.  He is putting words into sentences now.  Joseph is running! :)  He loves to play "green light, red light."  Steps are really still an issue, but it is better than it was.  I will say that.  He knows most of his letters and colors, and he is starting to show interest in numbers.  He likes to count like this..."one, two, six...."  Too cute.  I love him to pieces.

2 weeks from today I'll have a follow up on Jonathan!  We have another ultrasound and I can't wait to see him!